I keep getting asked if I can refer parents to a practitioner. The honest answer is no. I am not very helpful to many of you because I don't live near you and I don't know what your options are. I don't know what you've tried and I don't know anything about your child. It takes a lot of work to track down your options. And parents, it is your job to perform that hard work. It is hard to know where to start. I've been there. I've run in circles with OT, Feeding Clinics, Psychologists, etc. Lots of circles. Lot's of trying different things with different people. We take breaks when it doesn't work, but we never give up.
When I started my website www.arfidmom.com in January 2016, it was simply to find other parents to talk to. For me, this was more helpful than finding a practitioner at the time...this is the best place to start in my opinion - talking to other parents. If you aren't talking to other parents, then that is where you start. There are lots of you following my FB page - use it to find each other. Post the state or major city you are near and see if there are others - then connect privately in messenger once you've identified each other. I will share it to make sure you all see it. If you don't want to post, then ask me to.
Once you have each other, compare notes, then find a practitioner. Typically, it would be an occupational therapist. I'm not a doctor, but that's where I would start as an ARFID mom. Someone trained in ARFID is ideal, but feeding therapy is good too. Not too helpful to start with a nutritionist in my opinion, but maybe down the road. I personally look for help with feeding therapy, sensory work, and calming techniques - because I know this is what my son needs. You know what your child needs too, just trust it. It may not be the same. Every ARFID is different.
My advice to you is to keep trying, and ALWAYS follow your gut. You KNOW when you find someone that gets it and you KNOW when you don't. Listen to it. You have to keep trying until you get there. When you find someone that "gets it" and "believes in you" and doesn't give you that look like you are a crazy person or at fault, then STICK WITH THEM. Finding someone that believes in you and understands your child is the person you want to work with no matter how long it takes. And it will take time :). If I had the cure, then I would share it. But I don't, I just have lots of experience - and that I am willing to share :). Best wishes to you all.
I am an ARFID Mom. I am the mother of a 12 year old boy with Avoidant/Restrictive Food Intake Disorder (ARFID). I have become the "expert" on my son's feeding issues. I am here to share what I've learned.